Sunday, January 30, 2011

And the Worrying Begins...

As if it ever ended right? But this week it's particularly annoying. On Thursday I go in to surgery. Again. For the 7th time in 5 years. I have never been apprehensive before surgery. I always think of it as something that has to be done, and that after a week of hanging out in my bed, I'll be back to normal. But this time is different.
Since my anxiety started, I have been afraid of almost everything. Every time I board a plane I think of what would happen to Neisan if the plane crashed. Every time I leave for work I have to force myself to think of anything besides what would happen to Neisan if I got into an accident. And now I am going to be put under anesthesia, and let someone cut into me and scrape my insides out. I'll bet you can't guess what's going through my mind... And the fear is SO real. 
So all of this worrying got me thinking. How many of the things I have ever worried about in my lifetime have actually happened? The answer is not many. I have traveled a bazillion times - and come home unharmed. I get in my car every single day and make it safely to my destination. I have had 7 surgeries - and healed beautifully. When I was in high school I was worried I wouldn't get into college. When I started college I worried I wouldn't find a job. When I started Hemline I was worried it wouldn't succeed. When I started trying to have a baby I worried it would never happen. Sometimes I just sit back and watch Neisan go about his day. His biggest worry is whether the dogs will try to steal his cookie, or that he will have to sit still for 2 minutes to get his diaper changed. He is happy. Because he doesn't worry about things that may or may not happen.

"People gather bundles of sticks to build bridges they never cross" - Author Unknown

Here's to a week without worrying about things you cannot control - and to a smooth surgery and easy recovery in the next step to a new life in the Kennedy family.

Wednesday, January 12, 2011

The Significance of 12

Twelve. My beautiful son was born on November 12. My sweet little dachshund was born today, on January 12. And then there's my dad. He was also born on this day, January 12, 1956. And 38 years later, he left this earth a young man.

Since the beginning of my short blogging life, I have had the goal of writing about things that made me feel. Good, bad, happy - whatever. If it made me feel something, I wanted to write about it. But the subject of my dad has been a hard one to sit and write about. Other than Neisan, this subject gives me the most feeling. But different feelings than what I have for Neisan. They aren't always good. My dad, his life, and his death were and are huge parts of my life. These things molded me into the person I am today. And I think it's time to write about him.

When I sit and think about my dad and the things I know about him, I have to think if they are actual memories of him, or something I was told. I don't remember him being well. He was diagnosed with cancer - a brain tumor - when I was 6 years old. I remember the first time he had a seizure like it was yesterday. My best friend Sarah and her mom were dropping me off at my house. When we got to the door, my mom was running towards us with a blanket in her hands. I still don't know why she had the blanket, or even why I remember her having it, but that blue fleece monstrosity always stands out to me. Sarah's mom was a nurse. We ran into the kitchen where my dad was lying on the floor, shaking. Convulsing more like it. Sarah's mom started CPR on him and kept it up until the ambulance got there. I remember seeing my brother Jake standing in the kitchen, not saying a word. I was looking at him for reassurance, but nobody had any to give. I really don't remember much else about that day...

This was just the first of many seizures I would see or hear throughout my childhood. I remember lying in bed and hearing my mom sort of yelling at him out of fear. I remember hearing her give him a bath because he had a seizure and lost control of his bladder. I can't even begin to know what that must have felt like for her. Or him for that matter. They were high school sweethearts. She was his world, and he was hers. The humiliation for him and the fear for her in that situation is something I can't even fathom. I was terrified to stay home alone with him. I was so afraid he would have a seizure when my mom wasn't there. I would cry hysterically when my mom left for work. I just didn't know what I would have done had something happened. 

While I have some scary memories of my dad, there are so many good ones. He lived his life for his family, and would have given the shirt off his back to anyone in need. He was always thinking about fun things to do with me. His favorite? Stealing things from the hospital rooms to play with once we were home. Syringes made amazing water guns. Rubber gloves were great balloons. If you filled them with water and poked a tiny hole in each finger tip, you could "milk a cow". He even tried to take a stethoscope when the nurse left the room because "Annie would love this!". I remember making houses out of playing cards then taking rubber bands and shooting them all down. One of my favorites is when he would give me my bath. He would give me a razor with the blade taken out and tons of bubbles in the bath. He'd put them on my face like a beard, and I'd shave them all off. And holidays at our house were the best! He got so in to them. Every year on Halloween, he made a dummy out of newspaper for stuffing and some of his old clothes. And a creepy old man mask. His name was Ralph. Ralph would be perched up on the front porch on a chair, my dad hiding behind him. Every little trick - or- treater who came to the door got the living crap scared out of them as my dad jumped up with Ralph in his arms. Every year on Easter morning, we would follow the trail of easter bunny turds - aka Cocoa Puffs - to our baskets. I totally believed that damn bunny pooped in my house. Or the 4th of July. It was his favorite. He and my papa would sneak away when nobody was paying attention and set off a cannon. A real life, louder than hell cannon. Every year all the unsuspecting family jumped a mile when that thing went off. All you could hear after the screams was laughter coming from his hiding place. That day is always a little sad without the cannon.

He lived for four years with cancer. He was told when he was diagnosed that he only had a few months left. But he was a fighter. And I am so thankful he was. Like I said, I don't remember him before he was sick. While some of my memories are scary and hard to think about, had he not fought, I wouldn't remember him at all. He passed away in October of 1994. That same month I turned 11. I replay that day often in my head. He had been in the hospital for about a week. My grandma brought me there so I could see  him, which wasn't different from any other time he was hospitalized. But when I got there, it was different. Our priest, Father Chuck was there which wasn't like the other times. I remember thinking something wasn't right. It was getting late, so my mom told me to go in and say goodbye to him. I had no idea it would be the last time I would talk to him. He hadn't said anything in days. He was on a ventilator. I walked in his room like I had done so many times before. I held his hand and bent down to give him a hug and to tell him bye. As I bent down, he squeezed my hand. He hugged me with the other one, and whispered "Bye A.J., I love you". "I love you too, Dad". I ran out of his room ecstatic to tell my mom that he talked to me. I left that night thinking for sure that he was getting better. 

I stayed the night with my Aunt Diane that night. The next morning, instead of my mom coming to get me, it was my grandma. When we got in the car, I asked her how my dad was doing. "He's resting" she told me. "Good", I said, "he needs his rest". When I got home, my brothers and mom were sitting on the couch, not saying much at all. The house was quiet. My mom held her arms out to me and told me to come sit by her. She sat me down next to her and hugged me. "Daddy died this morning". I didn't know what to do. I cried. I had no idea in my young life the severity of his disease. He had been through the hospital routine so many times and come back home. I was completely unprepared. I remember asking my mom if I could call my best friend, Sarah. She cried with me while I tried to figure out what had happened.

So many people came to his funeral. He had a ton of friends. So many people loved him. He was a good man. An amazing father. A loving husband. Friend. Brother. Son. I remember going with my mom to pick out his casket. I wanted him to have a wooden one. The metal ones seemed so cold. I went with my aunt Diane to pick out a sweater for him to wear. He wore a hat with my brothers and my pictures on it. He was barefoot. Just socks. That was his favorite way to be. 

When I think about his life now, and the way it ended, it seems so unfair. He was so young. He didn't get to see his kids graduate high school. He never got to meet his grandkids. But the legacy he has left behind and the amazingly good memories I have of him are so important to who I am today. I miss him terribly, especially on days like today. But he is no longer in pain. Our lives have gone on, knowing that one day we will meet him again. His short life taught me to give Neisan happy memories every chance I get. Because when one day he has to go on without me, I want him to have no doubt in his mind the love I have for him. I talk about my dad to Neisan every day. I show him pictures, tell him stories. The people my dad left behind will continue to tell stories of him so that he can continue to live in our hearts and minds. 

"What makes greatness is starting something that lives after you." - Ralph Stockman

I love you dad.

Thursday, January 6, 2011

Decisions, Decisions...

Decisions I thought I would never have... and now I don't know what to do with them.

As soon as Neisan turned a year old, I started missing that baby stage. It seemed like the wait to get pregnant and the pregnancy itself was painfully long, but his little life is flying by! While I'm not ready for another baby right at this moment, I have been thinking about the subject a lot lately.

Before our frozen embryo transfer that ended with Neisan, my fertility doctor told me that it would be my last chance at a biological child. My body didn't handle the IVF process very well, and he was afraid to put it under so much stress again. My ovaries were in bad shape, and to go through the process again would be too much for them to handle. For the few weeks after I had this conversation with him, I felt defeated. I just knew the frozen embryo wouldn't stick and that I would be done. I spent those few weeks worrying and crying over something I had no control over. I was angry. I watched people all around me get pregnant when they weren't trying. I had to listen to the comments from them - "just stop trying so hard and it will happen" - or "you can always adopt!". Those things just made me more angry. Those things are so easy to say when you haven't experienced infertility. I mean the one thing that a woman is built to do, I couldn't. I was so used to working towards things I wanted, and I always achieved that. This was something that I had no control over. I felt helpless. Sad. Angry.

Fast-forward to yesterday. I decided to make an appointment with my fertility doctor. I wanted to talk with him just to see what my options were. If he told me there was no way I could do IVF again, I would have been upset, but at least I would have an answer. I have always wanted to adopt, but Geno isn't completely sold on the idea, and I respect that. It was so strange being back in that office. I spent so much time there with all of those people. They were there through my best and worst times. I was nervous, shaking and had a fake smile pasted on my terrified face. As Dr. Millroy did my sonogram, she started measuring the cysts on my ovaries. In my ovaries I should say. I have a history with endometriosis, and have had surgery to remove it before. But this time it is even worse. I got teary eyed as she kept measuring, but held it together. I had never met this doctor before, but Dr. Stewart was away. I didn't want her to think I couldn't handle what she was about to tell me. She came back in the room with a few papers in her hands. The first one was a sheet about the surgical procedure I have to have to remove the endometriomas from my ovaries. The second? A sheet about my next IVF cycle. Yes, I CAN DO IT AGAIN!!!!! I instantly started crying. I was so prepared for bad news. In her words, "my reproductive life is NOT over"!!

So this brings me to some choices and decisions. Obviously I will have the surgery to remove the cysts. That is set for February 3. After that, I have to let my ovaries heal for two months. I will be put on birth control to shut them down, that way no endometriosis can grow. In the mean time, I have to make a decision. On one hand, I want Neisan to have a sibling so badly. I think it's so important in a persons life to have a sibling. When my dad passed away, nobody understood what I was going through like my brothers. We had all lost a father together. On the other hand, IVF is the most emotional thing I have ever gone through. Aside from the shots I have to give myself, the surgery to retrieve the eggs, the physically demanding part of being at the clinic every day for blood work and sonograms and the insane costs associated with it, I have to emotionally prepare myself for the worst. It's a roller coaster that I'm not completely ready to ride again yet. And this is all aside from the ridiculously hard pregnancy I had!
I'm also nervous that my family will not be behind me 100% if I choose this route. I had to rely so heavily on them through all of it that I'm afraid they will think it's a bad decision. And more than anything I need my family. And I can already hear the comments I'll have to deal with - "well at least if this doesn't work, you still have Neisan" - while this is true, it won't change that fact that I will possibly have to deal with losing a potential child.

So over these next few months, I have to make some decisions. I am at an amazing point in my career, I'm very content with my very ornery 13 month old, and we are finally starting to sleep through the night again. When I look at Neisan, I forget about all the bad stuff. He is the best part of me. Geno is with me completely in our decision. While we don't have control over the outcome, we DO have control over this decision. So wish me luck friends, because it looks like the roller coaster has already begun...